more Crohn's talk

Posted by J on Monday, September 20, 2010. Filed under: ,

To be perfectly honest, I have not been feeling well. I went off my steroid and since there I've felt "off". The sad thing is, if I don't eat, I feel fine, as soon as I do I feel like I have to run to the bathroom (and for a few hours after that). I'm having pain, cramps, I have no idea what this all means. My doctor is not worried at this point, but I am. I have no idea what "normal" means. I have no idea how long I've been sick. My doctor mentioned that I maybe have never been lactose intolerant it was most like a "simmering Crohn's" so apparently, it has gotten worse. Is this disease progressive? I've find mixed information on this and I'm seriously freaking out just from sheer lack of information. There is no set diet, so set drug therapies, no set anything for this. It's just all trial and error and I think that is what freaks me the most: the lack of control. I have no idea what is going to happen to me and that scares me.

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