Posted by J on Wednesday, June 1, 2011. Filed under: , , , ,

I just absolutely do not believe that it's June! May seemed fast, and slow at the same time. I'm glad that school is going to be out for the summer next week, at the same time I'm nervous to try to entertain these kids all summer. Right now I have ten minutes, to type this entry, before I need to start dinner. The baby is asleep (finally) I've been trying to get her to take a nap for the past two hours, sort of frustrating. I have nine days to finish my knitting sample, and for a few of those days my husband is taking my kids camping which means I'll have our 2-year-old all to myself (which means nothing will get done).

It being June also means that next month is the anniversary of my hospitalization and subsequent diagnosis with Crohn's. I really do feel much better than I have in years, but I'm also nervous. I'm honestly terrified of going somewhere with out a bathroom. I'm afraid to just go somewhere, anywhere, on a whim without planning it all out. We haven't been out to eat, and I haven't stayed overnight anywhere that didn't have a dedicated kitchen for nearly a year now. I realize that I can't keep living like this but I'm not sure how to get over it.

Getting on the antidepressants and anxiety meds was the first step but I'm still wary of changing my routine. This is working, for now, and I'm afraid to change it because I don't want to get sick. It all comes down to that. I don't want to be sick, who wants to be sick?! It's always in the back of my mind, every cramp, every noise, every time I pass gas (yeah who wants to talk about that?!) I'm afraid that my Crohn's is going to flare, even though it hasn't. I feel like the further away I get from my last flare I become more terrified of the one that's coming. I haven't heard of anyone that gets out of this with only having one flare and one hospitalization. I'm terrified of going off of the SCD and adding things back in. The closer it gets to my big one year mark the more nervous I get.

I know I don't have to go off my diet at all, I'm in charge of what I put in my mouth, but I'm feeling a lot of pressure to do so.  A lot of things I've read have suggested that most people who have been on the diet successfully for some time have been able to go out to eat and have one meal completely off diet very occasionally (about once a month).  My kids really want to go to Pizza Hut on Tuesdays when they have the all you can eat buffet. When I think about going there I end up analyzing every ingredient in something I might eat. If I have a slice of pizza that's not just one thing that's not currently on my diet, it's several! Milk, lactose, sugar, gluten, several grains, probably soy. I could go and just not eat, or have a salad with out dressing (or cheese since the shredded bagged stuff is covered in cornstarch to keep it from sticking together), but I won't really enjoy it because I'm so paranoid about cross contamination and the fact that it's Pizza Hut, there's flour flying through the air there!

Besides if I'm going to go have a meal completely off diet, I'd rather eat my grandma's perogies or her fried fish at least I know for sure what goes into those things even if they are completely not something I should eat right now.

4 Responses to June?!

  1. Anonymous

    Is there any particular reason the 2 year old isn't going camping too? I mean, it seems like she should be just fine with it, especially if everyone else is going. Then at least you would have a real break?
    I'm sure things will be okay and you'll be able to not worry as much eventually.

  2. jmneiderer

    He didn't want to take her because she's still in diapers, and he said it was going to be too cold (went down to below 40 last night) for her to sleep in the tent. She was so sad! I don't camp, I am allergic to about nine types of tree pollen and being in the woods makes me miserable (too bad we freaking live here).

  3. Melissa

    Ohhh I see. Sorry! I feel bad like I was demanding an explanation from you. Didn't mean to word it like that. I am such a dork, I forget how COLD it gets camping. It would def. be a lot for a little person to handle. Well, I'm sure she can go again when it gets warmer! I totally know what you mean about pollen.

  4. jmneiderer

    lol no I didn't take it that way. I wish he could have taken her but she's a real hand full and he wouldn't have been able to really keep an eye on her while trying to tend the fire and whatnot. We're planning on doing a camp out in the backyard sometime this summer, she'll love it. :-)

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