Ghost Cakes
Posted by J on Sunday, October 31, 2010.No Comments »
The thrid batch of cupcakes are in the oven to take to school tomorrow I'm sitting in the kitchen and I am hungry. Not a good thing in my condition. There is nothing I can just snack on that doesn't have to be prepared. Thank goodness Baby Girl and I made applesauce the other day.
I don't think I posted about this before but about a month ago I requested some lab work and lazied around until last Thrusday to actually go get it done. The doctor, it turns out, had ordered 6 tests when I had only requested two. It was a lot of vials!
Anyway I got my results today thanks to digital medical records and everything looks fine except that my clotting rate is slightly too slow. Seriously missed "normal" by .02 which is an indication that my vitamin K is low, which I expected due to the fact that my legs were covered in very large scary looking bruises. So there's that. I go to my primary doctor next week, I'm not sure if he's going to do anything about that right now or just recheck me in a couple of months. I also get to visit the GI next week as well, I'm going to swallow my pride and ask for more samples of my medication if she intends me to stay on it. $118 a month is a lot for meds I may have to be on for the rest of my life!
I blogged about this new knitting book I had to have and ordered for one pattern?
Yeah, that one.
Well I knitted that hat and I've actually worn it a few times, which is sort of sad since the hat is wool is it is still October after all. I'm not ready for it to be cold yet.
I'm still awake. I started getting tired around 11 and ignored it. Then I started googling things about bed bugs. I will probably be up the rest of the night now. Ugh. Hopefully I can catch a nap during the day, even if I do manage to fall alseep in the next couple of hours I have to get up at 7 to take all my meds. At least it would be a little sleep which is better than nothing.
I try to not spend a lot of time feeling sorry for myself. I can not dwell on the fact that I have incurable disease. Incurable, that's a terrible word. When I think of it I always think of death but this disease itself will not kill me. It's just going to make my life terribly inconvenient, and that is an understatement.
I don't even know how I'm supposed to be feeling, I have no idea what "normal" is. It's so hard to figure out a way to eat that's safe for me and will feed my family. I'm tired of making two meals for dinner every night since my diet is so limited right now. I feel like all I'm doing is cooking. It's ridiculous, and I don't even know if it's working, it's only been a few months (feels like longer) and I'm still on (my very expensive) medication. I'm so frustrated, angry, and annoyed with the whole thing.
The only solution is that I have to deal with it. I've spent most of my life avoiding this very situation, which is probably why it took so long to find out what was actually wrong with me, but I can't do that anymore. So I've come to this point, this dead end, I'm doing everything I can in my power to feel okay, to feel better. I realize that it took me a long time to get sick and it's going to take a long time to get better.
I have these feelings of peace though, deep in my chest. I know that the Lord will guide carry me through this and that I'm going to be okay. I hate when people do that, what I just did, sort of lay out all the bad stuff and then sew it up neatly at the end with a "but I know the Lord will save me!" and I do believe that, but I also believe that I can't just sit around and wait for it to happen. I have to be proactive, and I have to trust in my instincts (God given) and do what I feel is right because that's how I feel that the Lord is working and presenting himself in my life.
Sometimes, when I'm feeling really sorry for myself I cry, or I write in my paper journal that I keep beside my bed until my hands hurt. I don't think that feeling sad makes me less faithful when I'm in that place I pray more. I have to believe that this is the journey I'm supposed to be on and I'm grateful for a lot of things in my life. I no longer have the freedoms I once did, I'm going to be restricted for the rest of my life due to this disease, but I can not let it control me entirely. It's something I have to deal with, not something I have to succumb to.
I haven't had internet in TWO WEEKS which totally kills my hopes at being accepted into blogHer. Strike 1 for Verizon DSL service. Seriously two weeks. We are so isolated out here I'm thankful this didn't happen during the winter when I would not have been able to leave the house let alone being completely cut off from the outside world.
I'm recovering from the "outage" by completely a list of online tasks that I complied for myself in the past couple of days. I. am. pathetic.
I've been trying a bunch of new recipes, mostly because I too like to have some sweets once in a while.
I used this recpie. I was really super excited that the dough held up enough for me to use my new crust cutters from W&S. Love.
And here is a butternut squash pie, which I perfer to the apple. My son loved this pie, and thought it was pumpkin. When I told him it was squash (after he was done eating it of course) he was sort of stunned. Recpie is here.
I'm not really into pie but my husband is.
Next up: some sort of cake.
I have a lot of knitting books. I'm trying not to buy any more for the time being, because I have so much gift-knitting to do. I don't want to distract myself.
Of course I saw this hat pattern and I had to have it.
September went very slow, and very fast. Actually it seems like time has both slowen down and sped up since July, since my grandfather died.
Tomorrow is his memorial service and we do not know if anyone is going to come. He's got brothers and sisters, and nieces, nephews, grandchildren, and great grandchildren. His grandchildren never met him, it goes without saying that his great grand children never met him either. I'm not sure if I really wanted to meet him, but now he's gone and I don't even have the option and that makes me sad.